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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: February 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research. 

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Rare Research Report logo

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

RDCRN Research Roundup: July 2022

July 6 2022

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Rare Diseases Clinical Research Network logo with text: Research Roundup, #RDCRN

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

New Consortium Spotlight Articles Offer Look Inside Rare Diseases Research

November 22 2021

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RDCRN_Blog-Sahin

Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research

October 26 2021

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Connie-Lee

Patient Spotlight: Anthony Anzell Fights Hereditary Hemorrhagic Telangiectasia with Endurance and Education

October 19 2021

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Anthony Anzell, PhD

Senior Researcher Spotlight: Douglas Marchuk Leads Disease-Gene Discoveries in Brain Vascular Malformations

October 13 2021

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Marchuk

Consortium Spotlight: Advancing Discoveries in Brain Vascular Malformations

October 7 2021

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#RareDiseasesSpotlight: A photo of Helen Kim, PhD
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The Brain Vascular Malformation Consortium (BVMC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). BVMC is funded under grant number U54NS065705 as a collaboration between NCATS and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the BVMC administrative coordinating center at University of California, San Francisco and does not necessarily represent the official views of the NIH. 

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