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Patient Advocacy Groups

Patient advocacy groups specializing in brain vascular malformations are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.


Alliance to Cure Cavernous Malformation

Informs, supports, and mobilizes those affected and drives research for cavernous angioma (cavernoma, cerebral cavernous malformation).


Cure HHT

Supports individuals and families affected by HHT through research, patient/family education, medical education, and treatment centers worldwide.

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Sturge-Weber Foundation

Provides support to patients and families with a diagnosis of Sturge-Weber syndrome (SWS) and funds research.