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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Friday, February 27, 2026, from 9 am to 5 pm EST.

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Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

Rare Research Report: November 2025

November 25 2025

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

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Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Rare Research Report: September 2025

September 22 2025

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RDCRN Research Roundup: July 2022

July 6 2022

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Rare Diseases Clinical Research Network logo with text: Research Roundup, #RDCRN

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

New Consortium Spotlight Articles Offer Look Inside Rare Diseases Research

November 22 2021

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Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research

October 26 2021

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Connie-Lee

Patient Spotlight: Anthony Anzell Fights Hereditary Hemorrhagic Telangiectasia with Endurance and Education

October 19 2021

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Anthony Anzell, PhD
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The Brain Vascular Malformation Consortium (BVMC) is a previously funded research group of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). BVMC is funded under grant number U54NS065705 as a collaboration between NCATS and the National Institute of Neurological Disorders and Stroke (NINDS). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the BVMC administrative coordinating center at University of California, San Francisco and does not necessarily represent the official views of the NIH.