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Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Rare Research Report: July 2024

July 26 2024

Rare Research Report: June 2024

June 26 2024

Rare Research Report: April 2024

April 24 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Cerebral Cavernous Malformations Over Time: What We’re Learning from a Natural History Study

August 25 2023

Rare Research Report: February 2023

February 22 2023

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant