Latest News

Rare Research Report: July 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

RDCRN Research Roundup: July 2022

July 6 2022

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

New Consortium Spotlight Articles Offer Look Inside Rare Diseases Research

November 22 2021

Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research

October 26 2021

Patient Spotlight: Anthony Anzell Fights Hereditary Hemorrhagic Telangiectasia with Endurance and Education

October 19 2021

Senior Researcher Spotlight: Douglas Marchuk Leads Disease-Gene Discoveries in Brain Vascular Malformations

October 13 2021

Consortium Spotlight: Advancing Discoveries in Brain Vascular Malformations

October 7 2021

#RareDiseasesSpotlight: A photo of Helen Kim, PhD

RDCRN Research Roundup: October 2021

October 5 2021

Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network